Wednesday, June 20, 2012
The Parrot Died...Onward to Red Kool-Aid
I can only say that today was an "adventure". But today's adventure is not the subject of today's post. No, no, that would take much too long.
Instead I just want to tell you that the colorful parrot (of previous posts) has died, so to speak. Topotecan (or the "colorful parrot" as I called it) stopped being effective in holding my ovarian cancer at bay.
So I am moving onward...to the next drug cocktail.
I am now on Lipodox which very much looks like red Kool-Aid.
If you've been following the news about chemo drugs (which you probably don't unless you yourself are a chemo druggie) you know that Doxil has been unavailable in the United States since late last year. It seems the contract manufacturer was found to be not properly maintaining its facility. But that's old news...if you wish, you can read about it here.
Happily, the FDA is allowing a supposed duplicate of Doxil called Lipodox to come into this country from India. I've had three treatments now.
I call it "Red Kool-Aid" because...well...it looks like red Kool-Aid. Some patients call it the "red devil" because of a nasty side-effect that causes ferocious blistering of the skin.
Fortunately, the skin healed before my 3rd infusion...and here I am, day eight of this third cycle, still doing well. The next few days will tell whether or not the skin problem comes back.
Today? A stressful day. A long day. Has nothing to do with my cancer. Let's just say it is a good thing in our lives...but with a long and stressful learning curve.
God bless all of you who are reading this...and most of all, those who are going through difficult situations, health or otherwise. Each day is good...no matter what. And God is good, no matter what.
Heading to bed. Perchance to sleep.